SUPPORT OUR TEAM JOURNEY IN MAKING IT STOP.
Dear Family and Friends,
We have brought together a great team of people this year to help us in our fundraising campaign. We are hoping to raise $10,000.00 by June 4th. We are all very committed to reaching this goal and take part in the Gutsy Walk to show our support for Emily as we know that this event directly benefits her and all others struggling with these diseases.
It has been a full year since Emily was first
diagnosed with IBD. Last year when we joined this fundraiser we
had just found out about her diagnosis and were in the midst of
understanding what this meant for Emily and ourselves as a family.
We can confidently say that over the last year we have
all learned a lot but still have a long way to go to fully
understand all the effects of this disease.
Update on Emily’s Condition
Emily was first diagnosed with
Ulcerative Colitis, since that diagnosis, our doctor has determined through
more tests that her immediate diagnosis of UC was not correct and Emily has now
been diagnosed with Crohn’s Disease. (The major difference being that Crohn’s
affects more areas of the digestive tract than UC does)
The medication Emily was first put
on seemed to help her symptoms and allowed us to have good days, weeks,
even months as we witnessed Emily feel better, gain weight and get back to her
fun loving self. Unfortunately, through recent blood tests we have discovered
that Emily's inflammation has not been controlled as well as we
hoped and were forced to do further testing. Last week we were in Calgary again for another
endoscopy, colonoscopy, ultrasound and MRI. We just got back the
test results and Emily's doctor has notified us that that we will have to
switch her medication to get the inflammation and fistula that was found under
The thing we, as parents,
struggle with most is the continually changing aspects of this
disease but Emily has been a trooper through it all. She has proven
to be a very tough girl and amazes the doctors with her patience through each
appointment and procedure. The last little while has seemed to be a
little harder on her though and having to change medication again (this time
injections) will be a struggle.
We are fortunate that for the most
part Emily's symptoms have not been very severe and overall
she has been doing well. Other than off and on tummy soreness and
other body discomfort she has been like any other kid. She is typically a
quite happy fun loving girl that enjoys spending time with her
sister, going to playschool with her friends and most of all loves playing
house and taking care of her babies. As much as we try to convince her
otherwise, in her mind she cannot grow up fast enough to "get married
and have babies of her own” (we must make it look easy) ;)
Gutsy Walk 2017
This disease has been a part of
Emily from such a young age that she really doesn’t know any different, but as
parents that were fortunate enough to live healthy childhoods it is hard to
watch her live one that is not so easy. As we help Emily through appointment
after appointment some easy some not, we know this isn’t the way a typical 4
year old spend their days. It is hard
not to be overtaken by emotions and saddened by this but if this experience has
taught us one thing, it is to live in the moment. When we have good days, we strive to enjoy
them as much as possible knowing that not so good ones could be around the
corner. As much as we pray and trust that everything will be okay, it is
discomforting not knowing what struggles we will come up
against next and what Emily’s quality of life will be in the years to come.
This is the main reason we feel so
strongly about this fundraiser and the Crohn’s and Colitis Canada Organization
as a whole. This is one way we can give
back that directly benefits not only Emily but all people struggling with this
Crohn’s and Colitis Canada is the
only national volunteer based charity that is focused on finding the cures for
Crohn’s disease and ulcerative colitis and improving the lives of children and
adults affected by these diseases. We
feel that supporting this charity truly can benefit the quality of life that we
can expect for Emily and all others that are affected by these diseases. The support we received from our family and
friends last year was overwhelming and our fundraising was a huge success. This has compelled us to raise our goal for
2017 in a big way! We have brought
together a great team of people and are striving to raise $10,000.00 as a team
this year. We are looking forward to participating in this event on
June 4th in Swift Current and you are more than welcome to join us
if you feel up to it. If you feel urged to donate please do so above, any
amount is greatly appreciated!!
Nathan and April
Be GUTSY with us! On Sunday, June 4, 2017, our team will be GUTSY walking alongside over 23,000 walkers across Canada to help stop the pain, multiple surgeries, and missed moments.
One in 150 Canadians live with Crohn’s disease and ulcerative colitis - a rate that ranks among the highest worldwide. Even more alarming is the rate at which children are being diagnosed: Crohn’s disease has doubled in kids under 10 years old since 1995. Families new to Canada are developing Crohn’s and colitis for the first time – often within the first generation.
It takes guts to make it stop. Help make it STOP by making a donation today. Every dollar you donate counts towards Crohn’s and Colitis Canada’s investment in transformational research, patient programs, advocacy, and awareness so that every child and adult with these diseases can live life to the fullest, and ultimately, be cured.
Thank you for showing you have the guts to make it stop. For life.